It’s All A Process
There was a point last year when I decided that I wanted to change a few things in my life. I wrote out my biggest goals on a sheet of…
One of Those Special Connections
Since planning this trip, I could not wait to write this post!!! One of my best friends came to stay with me, and meet me in-person for the FIRST TIME.…
Since I Started the Omav Treatment…
A rare sight: ME STANDING!! It’s been 4 1/2 months since I joined a new physical therapy program. And the same since I started the Omav treatment for Friedreich’s Ataxia.…
Me vs. Me
My 23rd birthday is a few days away and I’m looking forward to… my free Starbucks rewards drink lol. And also celebrating with the people I love which always makes…
Summer 2023: Amazing or Awful?
So which one was it, right? Amazing or awful? Did I go on awesome vacations or did I go to weird coffee shops? Did I go on really great dates…
Finding My Strengths
I took an assessment at my internship last week to find my top five strengths. Seeing those results made me happy because it solidified my belief that my experiences have…
Update: First Treatment Is Here!
On Feb 28, 2023 AKA Rare Disease Day, Reata Pharmaceuticals announced the FDA approved the very first treatment for FA!!! The Omaveloxolone drug that I had written a little over…
Would You Go the Extra Mile?
One of the most painful conversations I’ve had: last year, I confronted an old friend about feeling excluded from outings and I didn’t expect what came next… she said she…
Always Keep Moving Forward
At the beginning of August, I finally did something that I’ve been wanting to do for years. I mean like, seriously, since I entered college, and that was getting a…
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PositivelyAdri 